ALS community

How hope is everywhere when our community gathers

This past Sunday dawned crisp and cool on the eastern shore of Maryland, with a hint of light rain falling from a few clouds dappled against an otherwise vivid blue sky. I dressed to be outdoors, making sure my orange Tim Lowrey Panel T-shirt was visible under my jacket,…

Why last week was special in the ALS community

I love inspirational quotes and sayings. Throughout my life, I’ve stumbled upon passages from books or snippets of speeches from public figures and recognized them as a helpful way for me to understand or think about a current challenge in life. In some cases, they’ve served as mantras — easy…

When the Reaper Comes A-Knockin’, We Must Get A-Rockin’

When I was in elementary school, my mom would occasionally take my brother and me to Woolworth’s, our local five-and-dime store. We would often have lunch there, and my staple was the open-faced roast beef platter, followed by a hot fudge sundae. Afterward, my brother and I were left…

What Happens When We Compare Our Lives With ALS

When our kids started school this fall, I had a sense of relief that my husband, Todd, made it to see our youngest begin middle school. He’s now at the same school campus as our 15-year-old daughter. I’m glad we’re dealing with a school transition while Todd is still with…

BrainStorm Appoints VP of Patient Advocacy and Government Affairs

BrainStorm Cell Therapeutics has appointed a new vice president of patient advocacy and government affairs, a move intended to reinforce the company’s commitment to the amyotrophic lateral sclerosis (ALS) community. The new vice president, Mary Kay Turner, brings more than two decades of experience in biotech and pharmaceutical advocacy…