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Name

Amanda
Nickname

Amanda
Gender

Female
Location

Florida
Relationship

Patient
Short Bio

Hello,
I’m Amanda, a pALS and one of the ALS Forum moderators. My family has the SOD1 genetic mutation and we’ve lost 14 family members to ALS. I started volunteering or medical research in 2010. If you have any questions please feel free to reach out to me. I
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How long have you or the person that you are caring for had ALS?

Since December 2022
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