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How is Diane Huberty, our dearest RN?
Diane Huberty ought to have exceeded 600 moons with Amyotrophic Lateral Sclerosis . . . yet no word from her in many moons; I hope she continues to be ok . . . Canadian Steve Wells was regarded as the longest living Amyotrophic Lateral Sclerosis patient since Stephen Hawking passed but Wells does not appear active on the web.
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2 Replies
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Oh my, I haven’t heard the name Diane Huberty for many years… so it is interesting to find out how she is fairing in 2024. Her website “ALS patient care from both sides” https://www.alsfrombothsides.org/index.html
was the inspiration for my own ALS and Wellness Blog. I related to her experience of having worked in a hospital setting – – and now being an ALS patient. Does anyone have an update on her status? I wish her well and hope she is chugging along.
alsfrombothsides.org
ALS Patient Care From Both Sides
Information on ALS patient care by Diane Huberty who is both an ALS patient and a nurse.
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This is one of the most vexing issues regarding keeping patients on our minds . . . often no news is heard for very long period of time . . . sometimes this is explained by an obit but there are many patients who are very active but suddenly ‘disappear without a trace.’ As an example TipaCow had a contact person but the contact person ‘disappeared’ before TipaCow did . . . so what can one do now?
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