ALS News Today Forums | Birk | Activity https://alsnewstoday.com/forums/members/birk/activity/ Activity feed for Birk. Thu, 23 May 2024 23:56:58 -0500 https://buddypress.org/?v=2.6.10 en-US 30 hourly 2 27ebef54494964750c8a0c28e64e7f4e Birk replied to the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/#post-23409 Wed, 08 May 2024 12:25:15 -0500 Reply to ALS and Coronovirus

My wife said she used the VAERS Link on the CDC website to file the report.

]]> 8325407c0effb4e1fe2f0734e41e6e71 Birk replied to the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/#post-23409 Tue, 16 Apr 2024 23:48:39 -0500 Reply to ALS and Coronovirus

I recently was diagnosed with ALS by Mayos in December. It took over a year for me to get a diagnosis. In the end, they determined it was ALS but nearly all the neurologists I’ve seen, six of them, said my ALS is a-typical. I was tested for the genetic form and was found to be negative in that regards. My wife was an ER nurse during the…

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]]> 8ab065dc9126ef0209e10bd35c618c9f Birk replied to the discussion What do you think was the biggest reason your diagnosis was delayed? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/what-do-you-think-was-the-biggest-reason-your-diagnosis-was-delayed/#post-25371 Tue, 09 Apr 2024 23:22:29 -0500 Reply to What do you think was the biggest reason your diagnosis was delayed?

It took over a year to get diagnosed. I started with my PCP and she quickly determined I needed a neurologist which at that point things slowed down. It took me 5 months plus to get in and after I did, they couldn’t decide what I had. Eventually, one of my neurologists said this was taking too long to get answers and referred me to Mayo’s. It…

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]]> 02f7ae97ced4c80f71a5b7af33b6d7ee Birk became a registered member https://alsnewstoday.com/forums/activity/p/22526/ Fri, 05 Apr 2024 13:48:55 -0500 2