7 stages of ALS?
How do you discuss your case with your medical professionals? Do you refer to specific tests or the ALFSR score?
What information do you want at each appointment?
]]>BTW – I don’t consider death as a stage of ALS. It’s a stage of life.
]]>In reference to the ALSFRS, it is subjective as is neuroscience.
]]>Also, for me, more is more! I do not need a doctor hiding stuff because I might get scared or I might “get confused”. I appreciate honesty and as much technical information as I can get.
In a perfect world…refer the person with an yet-to-be-diagnosed neurological condition to the best hospital available.
]]>I realize my experiences may be very different than other pALS. Partially because the team at the ALS Clinic and research facility are amazing. Dr. Benatar has made a point of recruiting doctors and other staff members that are like minded, and compassionate. The other part, which greatly impacts my experience, is that I have known a couple of these doctors for over a decade through the research.
I wish everyone felt as confident in their medical staff as I do. It makes a difference to me.
Amanda
]]>I now have Dr Brown and his team. I can text him anytime and get a reply fast. I have to say honesty is what I want no sugar coating and that’s what I always get.
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