What a Month in the Hospital Taught Me About ALS Care
“I don’t know what that is.” “I don’t know how to use that.” These are a couple of the statements that ALS patients do not want to hear when a medical professional walks into the room. As a…
OutSpoken — James Clingman
James Clingman lives in Easley, South Carolina, with his wife Sylvia. He developed ALS symptoms in 2009 and was diagnosed on August 23, 2013. Although he is in the later stages of this disease, his goal remains to expand awareness and knowledge of all facets of ALS as well as other lesser-known diseases. He wants to encourage everyone to acknowledge the blessing of life no matter what hand they are dealt. He is also a former adjunct professor, author, business consultant and has a daughter, Kiah, who lives in Atlanta, Georgia.
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We must do more to accelerate the diagnosis and treatment of ALS
ALS was first identified in 1869, though its symptoms were documented in medical literature as early as 1824. It’s intriguing that the sequence of the disease today is often similar, with initial symptoms followed by…
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A Universe of Possibilities Occur in That One Last Breath
Have you ever thought about what a single breath means to you? What you can do in one breath? What you can say with one breath? What or whom you can see during one breath? We who suffer from…
Finding My Way Through the Doorway Marked ‘Humility’
“Find the victory in this.” For nearly three decades, I’ve carried these five provocative words in my mind. Like my life, their meaning to me has evolved over time. I first heard them spoken at the funeral of a…
‘ALS x 5’: How Familial ALS Has Shaped My Friend’s Journey in Life
Just when we think life has dealt us the worst hand possible, along comes someone whose circumstances make ours look a little less daunting. I’ve experienced that feeling a few times in a support group I attend and when…
My Cycling Days May Be Over, but I’m Still in the Pace Line
I contend that most people diagnosed with physically debilitating illnesses later in life previously had a favorite activity that consumed much of their time. Cycling was that for me. My cycling life ended nine years ago, and even…
Who Cares for the ALS Caregiver?
Often, as we discuss the ravages of disease, we give short shrift to one of the most vital aspects of debilitating illnesses like ALS. We offer our sympathy, prayers, money, remedies, and sentiments, which are all very positive…
Doc, Where’s the Instruction Manual for Living With ALS?
I was an avid cyclist in the warm months, and in the winter months in Cincinnati, I was a league bowler. But in late 2009, I started falling as I released my bowling ball, which turned out to be…
