ALS News Today Forums | DaveAndKimberly | Activity https://alsnewstoday.com/forums/members/daveandkimberly/activity/ Activity feed for DaveAndKimberly. Thu, 23 May 2024 23:56:58 -0500 https://buddypress.org/?v=2.6.10 en-US 30 hourly 2 dcb7d1d75d4c0952aaf923eb7c70e285 DaveAndKimberly replied to the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/#post-23409 Tue, 14 May 2024 02:19:30 -0500 Reply to ALS and Coronovirus

Also, if you haven’t seen this article yet, it just came out:

Whistleblower Exposes Internal Email Suggesting Pfizer Offered “Separate and Distinct” COVID-19 Vaccines to Employees

https://www.thegatewaypundit.com/2024/05/whistleblower-exposes-internal-email-suggesting-pfizer-offered-separate/

]]> 557fe641ae9dbbe7b9492897cb045cab DaveAndKimberly replied to the discussion CNM-AU8 Trial in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/cnm-au8-trial/#post-15097 Mon, 13 May 2024 16:01:38 -0500 Reply to CNM-AU8 Trial

Richard, sorry, but I haven’t received your message until this one now.

]]> fcffecff86c59bf2dc9e59821a0396b9 DaveAndKimberly replied to the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/#post-23409 Thu, 09 May 2024 17:04:10 -0500 Reply to ALS and Coronovirus

Thank you again for this link. I finally had a chance to fill it out

]]> 1e5d7a619ed483b160fe8c725afeabd1 DaveAndKimberly replied to the discussion CNM-AU8 Trial in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/cnm-au8-trial/#post-15097 Thu, 09 May 2024 00:14:50 -0500 Reply to CNM-AU8 Trial

Kimberly started taking the trial medication CNM-Au8 Expanded Access Program on Thursday, and by Sunday, we saw remarkable progress. Transitioning her from the walker, our usual mobility aid, became noticeably easier. With my help, she could balance herself for longer stretches without leaning heavily on me. Though it might seem insignificant…

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]]> 9aafe591e2921c000bedfc9adcb8ca11 DaveAndKimberly replied to the discussion CNM-AU8 Trial in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/cnm-au8-trial/#post-15097 Sun, 28 Apr 2024 20:04:53 -0500 Reply to CNM-AU8 Trial

I’m responding to this thread as I’m unable to initiate a new discussion about CNM-AU8 EAPs.

Has anyone in this community had firsthand experience with the CNM-AU8 EAP?

Kimberly is scheduled to visit the clinic on 5/2 for the CNM-AU8 EAP, and I’m curious if anyone has observed any improvements or has insights or recommendations to share with us.

Thank you.

]]> b77566335450a3fc8dce3555bb8d9d6d DaveAndKimberly replied to the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/#post-23409 Sun, 28 Apr 2024 19:19:59 -0500 Reply to ALS and Coronovirus

Which CDC site did you input your information?

I’ve completed the CDC ALS survey info, but never received a call about the batch numbers that have affected Kimbelry. Thanks

]]> 89b4ce46b883d0056accf352d470a2e8 DaveAndKimberly replied to the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/#post-23409 Sun, 14 Apr 2024 00:16:12 -0500 Reply to ALS and Coronovirus

So, yesterday we had to visit a Doc-in-the-box for a UTI, first one since being diagnosed with ALS. The more interesting part to us both, is that when I talked with the Doc, and said that we believed Kim’s ALS is the result of the COVID Vaccine, he didn’t even bat an eye, or read me the ‘talking points’ or want to tie me up to the whipping…

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]]> a39a8936d74115a2743d14c0ce8f0b1a DaveAndKimberly replied to the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/#post-25243 Sun, 18 Feb 2024 21:22:02 -0600 Reply to ALS and Coronovirus

Hello,

My previous post must have had issues, so I’m breaking this down in parts:

Very new to the site, but We (my wife of 34 years, and I) strongly believe that her ALS came from the Pfizer COVID vaccine. Her symptoms became noticeable 2 weeks after her second shot. Here’s how her symptoms presented:

End March of 2021

–Started to…

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]]> d0aaa5103e1a5829697931ead4312e57 DaveAndKimberly replied to the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/#post-25242 Fri, 16 Feb 2024 22:39:38 -0600 Reply to ALS and Coronovirus

Hello,

Very new to the site, but We (my wife of 34 years, and I) strongly believe that her ALS came from the Pfizer COVID vaccine. Her symptoms became noticeable 2 weeks after her second shot. Here’s how her symptoms presented:

· End March of 2021

o Started to feel tingling and numbness in left hand

· July 2021. Went to see PCM at…

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]]> ff62edaef657bc33a0219ab97212dd75 DaveAndKimberly became a registered member https://alsnewstoday.com/forums/activity/p/22066/ Fri, 16 Feb 2024 15:00:14 -0600 2