ALS News Today Forums | Paula Patriarca | Activity https://alsnewstoday.com/forums/members/mdaughter2/activity/ Activity feed for Paula Patriarca. Thu, 23 May 2024 23:56:58 -0500 https://buddypress.org/?v=2.6.10 en-US 30 hourly 2 bd5c8351bb8a7dabf17b1b667f63c587 Paula Patriarca replied to the discussion COVID-19 and correlation with ALS symptoms in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/covid-19-and-correlation-with-als-symptoms/#post-16136 Fri, 22 Mar 2024 12:04:17 -0500 Reply to COVID-19 and correlation with ALS symptoms

I agree that there are too many people for this to be a coincidence. More needs to be done to study this link whether it caused it or activated it is unknown until it is further studied. However, we are all proof that there is some type of link. Currently, there are so many neurologists and scientists studying ALS. I am hopeful that we will…

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]]> c594ae9c9411ab11c5bca4da6510a972 Paula Patriarca replied to the discussion ALS drugs in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/als-drugs/#post-25183 Thu, 14 Mar 2024 10:25:48 -0500 Reply to ALS drugs

Dagmar,

Could you please share what lifestyle changes and exercises you use effectively to slow down progression along with the Riluzole. My husband and I have been following you since he was diagnosed but it would be help if you could share what you find most effective. Thank you

]]> 904a05351fa608d4dc355fb8ae6fbecc Paula Patriarca replied to the discussion COVID-19 and correlation with ALS symptoms in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/covid-19-and-correlation-with-als-symptoms/#post-25180 Thu, 01 Feb 2024 02:11:14 -0600 Reply to COVID-19 and correlation with ALS symptoms

Sylvia,

The same here. My husband and I were hiking long distances and exercising regularly before May of 2021. We both got Covid in November of 2020. In March of 2021, we received the Covid Vaccine, Pfizer. After the vaccines, my husband’s symptoms started. There is no doubt in my mind that Covid and the Covid Vaccine played a role…

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]]> 12d33a0d48090f3e4b487ee82f0cfc43 Paula Patriarca replied to the discussion Dagmar's online book in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/dagmars-online-book/#post-23410 Tue, 24 Jan 2023 13:41:01 -0600 Reply to Dagmar's online book

Dagmar,

Thank you so very much for all the information you provide.  You are the reason we continue to navigate this with a positive attitude.  Please keep sharing as your ideas help so many families.

]]> dde07e928f6f7d7d9712211e14b1d270 Paula Patriarca started the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/ Tue, 24 Jan 2023 13:20:51 -0600 ALS and Coronovirus

My husband’s ALS symptoms started slightly after having Covid in November of 2020.  After getting the vaccine in March 2021 they escalated dramatically.  We will not be getting any of the vaccines.  For some reason, they seem to worsen his condition and we do not want to take that chance.

 

]]> eadf7d66c8558e81f52fe9cbe8ca0c22 Paula Patriarca became a registered member https://alsnewstoday.com/forums/activity/p/18049/ Thu, 05 Jan 2023 20:28:18 -0600 2