We know that newly diagnosed ALS patients and their families are well “aware” of ALS. Rather, they often ask for help navigating the ups and downs of living with the condition. So, for ALS Awareness Month, our forum moderators have created “ALS Tips & News You Can Use.” It’s a collection of up-to-date ALS information, resources, and tips.  Forum members are invited to comment and share their suggestions on each topic posted. Let’s help each other learn how to live with ALS.

Our favorite ALS resources:

So many web pages, and too much advice! It’s easy to feel overwhelmed when searching the internet to answer your questions about ALS. Everyone has a website nowadays, and not all contain current and valid information. Here are a few of our best picks. 

What additional ALS resources can you suggest?

1. Your ALS Guide http://www.youralsguide.com
Improving the everyday quality of life for families impacted by ALS. Trusted information, practical tips, educational videos, expert advice, helpful resources, and more—all in one place.

2. The ALS Association http://www.als.org (and for those outside of the U.S.) The MND Association http://www.mndassociation.org Both organizations provide global research, along with, assistance for people with ALS/MND by coordinating multidisciplinary care through certified clinical care centers and fostering government partnerships.

3. Les Turner ALS Foundation http://www.lesturnerals.org Helping people living with ALS receive the best quality of care and access to the most promising therapies. Online support groups, educational resources, and webinars reach an international audience.  

Your ALS Guide https://www.youralsguide.com/ Helpful articles along with short videos on ALS life topics, plus equipment recommendations.

I Am ALS https://www.iamals.org/ Keep up with the latest efforts for ALS advocacy in government, healthcare, and communities.

The ALS Network has been the friend I never wanted but never knew I needed… They offer such a wide array of free services including equipment loans, more than 30 monthly support groups, resources for children and families, educational programs, webinars, and each person living with ALS is paired with a professional care manager. My care manager has been an unbelievable resource and guide since the start of my journey. We check-in often and have become very good friends.

The ALS Network is also very involved with supporting advocacy and research efforts – to improve access to care along with finding better treatments and a cure for ALS. To find out more you can go to alsnetwork.org.

alsnetwork.org

Homepage | ALS Network

Homepage | ALS Network