ALS News Today Forums | Amanda | Activity https://alsnewstoday.com/forums/members/amanda-sifford/activity/ Activity feed for Amanda. Thu, 23 May 2024 23:56:58 -0500 https://buddypress.org/?v=2.6.10 en-US 30 hourly 2 33170c57038ea3397647cb25e3ffecef Amanda replied to the discussion genetic screening/unique situation in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/genetic-screening-unique-situation/#post-25514 Tue, 21 May 2024 13:33:38 -0500 Reply to genetic screening/unique situation

Hello Juliez,
There are several options -and some great suggestions have been posted. There is no wrong way to go about it as long as you are comfortable.

There is a study focusing on familial ALS – genetics. I’ve actually been tested 3 times. (As if the results would change LOL). Two for two different research programs I volunteered…

Read more

]]> c80a1a8fe34ea09a8bfad6e65c366cbd Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22895/#acomment-22935 Tue, 21 May 2024 13:16:13 -0500 Hello SamFriedlander,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the… Read more

In reply to - samfriedlander became a registered member ]]> c67c00670e8fd79933ec3596553d3b0b Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22899/#acomment-22934 Tue, 21 May 2024 13:15:53 -0500 Hello Nels,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - nels became a registered member ]]> 2bb3ff92568fe70b89a806dc173f84cc Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22916/#acomment-22933 Tue, 21 May 2024 13:15:27 -0500 Hello Mischa,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - Mischa became a registered member ]]> 9ba2e90d7bd646f5353ff32951509c81 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22917/#acomment-22932 Tue, 21 May 2024 13:15:12 -0500 Hello Stone,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - stone became a registered member ]]> 57a3b194383fa89c940cf5e4f370ca59 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22918/#acomment-22931 Tue, 21 May 2024 13:15:00 -0500 Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum discussions.… Read more

In reply to - smammon became a registered member ]]> 7fea43a1dd0f4afaf9f18150b8b34839 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22929/#acomment-22930 Tue, 21 May 2024 13:14:48 -0500 Hello Dundee,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - dundee became a registered member ]]> cd2da06aa78a403f2df8b33ecf3efd74 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22865/#acomment-22892 Wed, 15 May 2024 14:58:48 -0500 Hello,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - samfriedlandelf became a registered member ]]> 8e0566b1c31367bda9aba925182e574b Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22866/#acomment-22891 Wed, 15 May 2024 14:58:35 -0500 Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum discussions.… Read more

In reply to - ksutton became a registered member ]]> f4df59674c953f762d4290088adc6ec7 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22884/#acomment-22889 Wed, 15 May 2024 14:58:25 -0500 Hello Powery,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - powery became a registered member ]]> 545eac45c9a2441ad3c0d0a9fd76a396 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22885/#acomment-22888 Wed, 15 May 2024 14:58:11 -0500 Hello Tom140,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - tom140 became a registered member ]]> 93dc30f73aa0e030da13c528d6475017 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22886/#acomment-22887 Wed, 15 May 2024 14:57:56 -0500 Hello Lus,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - lus became a registered member ]]> 2f6526b3a6ca6ed6214f4f1607433ccf Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22808/#acomment-22864 Mon, 13 May 2024 12:15:40 -0500 Hello SLB50,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - slb50 became a registered member ]]> 4d25a068677d1b677030732b9532213c Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22811/#acomment-22862 Mon, 13 May 2024 12:14:54 -0500 Hello Beth,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - beth became a registered member ]]> f43755c4aa6c496f2a021795a3947de8 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22812/#acomment-22861 Mon, 13 May 2024 12:14:38 -0500 Hello Lusoper,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - lusoper became a registered member ]]> 57223d9e8f27d68422d8114e7ff028e7 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22814/#acomment-22859 Mon, 13 May 2024 12:14:19 -0500 Hello Lorrie,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - lorrie became a registered member ]]> d87fe46d521922d71ca7d245f3a6752a Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22823/#acomment-22858 Mon, 13 May 2024 12:14:07 -0500 Hi Bubbles,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - bubbles became a registered member ]]> 6e5a5005f76919b1d8e7c1c649844c29 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22824/#acomment-22857 Mon, 13 May 2024 12:13:52 -0500 Hi Martha,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - martha became a registered member ]]> 6afba12c81c36212d79c253502635cce Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22825/#acomment-22856 Mon, 13 May 2024 12:13:40 -0500 Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum discussions.… Read more

In reply to - mon became a registered member ]]> cb29589af8ff2965e4fefadf055608fb Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22826/#acomment-22855 Mon, 13 May 2024 12:13:32 -0500 Hello VLane,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - vlane became a registered member ]]> 11f416b16109605845b7b0e35cdacb88 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22827/#acomment-22854 Mon, 13 May 2024 12:13:16 -0500 Hello Mag,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - mag became a registered member ]]> a37b5151c431a180cb5896a39494050e Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22828/#acomment-22853 Mon, 13 May 2024 12:13:06 -0500 Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum discussions.… Read more

In reply to - ste became a registered member ]]> 3dc24f0fe56ab7017f6959a07f4be9ac Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22829/#acomment-22852 Mon, 13 May 2024 12:12:57 -0500 Hi Aimeesmith1970,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the… Read more

In reply to - aimeesmith1970 became a registered member ]]> 38759467407e5d924625b79ab1eb5048 Amanda replied to the discussion ALS and Coronovirus in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/als-and-coronovirus/#post-23409 Wed, 08 May 2024 13:03:33 -0500 Reply to ALS and Coronovirus

This is the CDC website discussed.

https://www.cdc.gov/vaccinesafety/ensuringsafety/monitoring/vaers/index.html

On the lower right side there is a link to report adverse effects or concerns.

cdc.gov

VAERS | Vaccine Safety | CDC

VAERS is the national vaccine safety monitoring system that accepts reports of adverse events after vaccination. The system can quickly detect potential safety issues with vaccines.

]]> b32c27bc1499c6e064d7a0782374e094 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22780/#acomment-22805 Wed, 08 May 2024 12:59:14 -0500 Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - rabbit became a registered member ]]> d539339b466fabee24163630f105a4fe Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22781/#acomment-22804 Wed, 08 May 2024 12:59:07 -0500 Hello Charlyhoarse,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over… Read more

In reply to - charlyhoarse became a registered member ]]> b311d4d7c6c6a6d09aa54d60943e9353 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22785/#acomment-22803 Wed, 08 May 2024 12:58:53 -0500 Hello Marcia,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the… Read more

In reply to - marcia became a registered member ]]> 2922cf9a9ceab9a3181c57bbcd16e8ee Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22786/#acomment-22802 Wed, 08 May 2024 12:58:36 -0500 Hello,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - gailypoo became a registered member ]]> 62271a581266f4fa749be4038ab4fe41 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22787/#acomment-22801 Wed, 08 May 2024 12:58:22 -0500 Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - grandma became a registered member ]]> 7c3bed5adc39f6290e7f469bba40beae Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22729/#acomment-22778 Fri, 03 May 2024 13:42:56 -0500 Hello Fede,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - fede became a registered member ]]> 01a08c9edd15db13d25cc542df08b822 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22739/#acomment-22777 Fri, 03 May 2024 13:42:43 -0500 Hello DrO,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - dro became a registered member ]]> be9658c2387e0b8ff119f8487d66566b Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22740/#acomment-22776 Fri, 03 May 2024 13:42:28 -0500 Hello BopBop,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the… Read more

In reply to - bobbop became a registered member ]]> 01b5e5bee34b3a77950c8246c3935059 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22751/#acomment-22775 Fri, 03 May 2024 13:42:14 -0500 Hello Jamesie,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the… Read more

In reply to - jamesie became a registered member ]]> 4ac6e18900876c9bbd11d6dcf346737e Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22752/#acomment-22774 Fri, 03 May 2024 13:42:01 -0500 Hello,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - alexs became a registered member ]]> bc5de0816164a431d9080ee4b81b83c0 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22753/#acomment-22773 Fri, 03 May 2024 13:41:34 -0500 Hello Stoney,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the… Read more

In reply to - stoney became a registered member ]]> c0083906467aeb4b0ab20889aed2f4a3 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22766/#acomment-22772 Fri, 03 May 2024 13:41:22 -0500 Hello Kip,
Welcome to the ALS Forum. I’m Amanda, and I co-moderate the forums with Dagmar. I have ALS, and am the QALSODU/Tofersen treatments for the genetic mutation for almost a year.
We have a great group of people in our online community. They are great at sharing experiences and information.
Please take the time to look over the forum… Read more

In reply to - kip became a registered member ]]> 0e63a41363ed7dad4be26ca93e42bef7 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22728/#acomment-22731 Mon, 29 Apr 2024 13:32:58 -0500 Welcome to the ALS forums. I’m Amanda, and I comoderate the forums with Dagmar. I’m so happy you have joined our online community. We have a great group of people who range from having ALS, caregivers and even a few medical professionals. I also have ALS, caused by a mutated SOD1 gene.

Please take the time to look over the forum… Read more

In reply to - edu became a registered member ]]> c8d12c26abc79f4a218c25bd66013255 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22729/#acomment-22730 Mon, 29 Apr 2024 13:32:42 -0500 Welcome to the ALS forums. I’m Amanda, and I comoderate the forums with Dagmar. I’m so happy you have joined our online community. We have a great group of people who range from having ALS, caregivers and even a few medical professionals. I also have ALS, caused by a mutated SOD1 gene.

Please take the time to look over the forum… Read more

In reply to - fede became a registered member ]]> c59caddb2d8423802d8749aaa2a2de79 Amanda started the discussion How do you approach ALS Awareness Month? in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/forum/boosting-our-voices/als-awareness-month/ Fri, 26 Apr 2024 13:03:15 -0500 How do you approach ALS Awareness Month?

Do you give much thought to ALS Awareness Month (May)? Or is every month ALS Awareness Month to you

]]> f6e003be490ec196fdeb1983172fc409 Amanda started the discussion Do you inquire about vaccinations when you hire caregivers? in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/forum/a-forum-for-als-parents-and-caregivers/ Tue, 23 Apr 2024 13:02:58 -0500 Do you inquire about vaccinations when you hire caregivers?

When you hire support to help out, how concerned are you if the hired caregiver has updated vaccines? Is that a concern for you and your family? Do you care if they have children or other risk factors that may make them more susceptible to viruses?

]]> 8aeacf95fe49bf7562a8350723cb2097 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22657/#acomment-22660 Mon, 22 Apr 2024 16:47:49 -0500 Hello,
I’m Amanda, and I am one of the co-moderators on the ALS News Today forums. Welcome you to the ALS Forums. We have a very supportive and knowledgeable online community. I hope you will chime in when you are comfortable and ask and answer questions, and share your experiences.

I have ALS and my family has a genetic mutation associated… Read more

In reply to - SueA became a registered member ]]> a57b8376b3835be1229bd77fa0efc25f Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22658/#acomment-22659 Mon, 22 Apr 2024 16:47:41 -0500 Hello,
I’m Amanda, and I am one of the co-moderators on the ALS News Today forums. Welcome you to the ALS Forums. We have a very supportive and knowledgeable online community. I hope you will chime in when you are comfortable and ask and answer questions, and share your experiences.

I have ALS and my family has a genetic mutation associated… Read more

In reply to - john05 became a registered member ]]> e008165d9aceafb5a821a2c27b8f1597 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22560/#acomment-22596 Mon, 15 Apr 2024 14:29:06 -0500 Hello,
I’m Amanda, and I am one of the co-moderators on the ALS News Today forums. Welcome you to the ALS Forums. We have a very supportive and knowledgeable online community. I hope you will chime in when you are comfortable and ask and answer questions, and share your experiences.

I have ALS and my family has a genetic mutation associated… Read more

In reply to - Emerson became a registered member ]]> 316013897304fedb775c62c7f124076d Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22561/#acomment-22595 Mon, 15 Apr 2024 14:28:30 -0500 Hello,
I’m Amanda, and I am one of the co-moderators on the ALS News Today forums. Welcome you to the ALS Forums. We have a very supportive and knowledgeable online community. I hope you will chime in when you are comfortable and ask and answer questions, and share your experiences.

I have ALS and my family has a genetic mutation associated… Read more

In reply to - Alcy became a registered member ]]> 960c3901c29feeeac7c4e3e204d43466 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22581/#acomment-22586 Mon, 15 Apr 2024 14:26:18 -0500 Hello,
I’m Amanda, and I am one of the co-moderators on the ALS News Today forums. I wanted to take a moment and welcome you to the ALS Forums. We have a very supportive and knowledgeable online community. I hope you will chime in when you are comfortable and ask and answer questions, and share your experiences.

I have ALS. My family has a… Read more

In reply to - Nomad became a registered member ]]> 775b8e104568997c3ef7bd5a292e77cd Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22582/#acomment-22585 Mon, 15 Apr 2024 14:26:12 -0500 Hello,
I’m Amanda, and I am one of the co-moderators on the ALS News Today forums. I wanted to take a moment and welcome you to the ALS Forums. We have a very supportive and knowledgeable online community. I hope you will chime in when you are comfortable and ask and answer questions, and share your experiences.

I have ALS. My family has a… Read more

In reply to - S.N. became a registered member ]]> d2dc80b60ec2c47075d1943cc313e9b3 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22579/#acomment-22584 Mon, 15 Apr 2024 14:20:53 -0500 I’ve read about this and talked to my doctors. This falls under a “red flag” for me.

In reply to - Heatherb to Amanda @Amanda

If you haven’t tried the Deanna Protocol, I recommend it. My husband started it mid-January and almost all the cramps and twitches have stopped. Ask for the hardship discount. 😉 They […]

]]> d78ed8f22ac470602f55f702fc82f7a2 Amanda started the discussion What are your concerns when hiring someone to provide help? in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/forum/a-forum-for-als-parents-and-caregivers/ Mon, 15 Apr 2024 14:19:08 -0500 What are your concerns when hiring someone to provide help?

Sometimes taking care of your home, family, and work is challenging. There never seems to be enough time to get everything done. Then, you add having ALS or having a loved one diagnosed with ALS to the picture. In addition to the shock, you now have to add making appointments, attending appointments, getting prescriptions and so much more to… Read more

]]> 51a9b2c81459f486f7885633cee80bfd Amanda replied to the discussion What’s the biggest ALS-related change you’re dealing with right now? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/whats-the-biggest-als-related-change-youre-dealing-with-right-now/#post-25412 Thu, 11 Apr 2024 16:32:59 -0500 Reply to What’s the biggest ALS-related change you’re dealing with right now?

For me it was having severe pain and cramps starting at least a decade before I was diagnosed. They came on slowly and I saw specialist after specialist. There were no answers from anyone.

I know that prodromal stage in ALS is recognized, however, the symptoms characterizing this phase are not definitive. There is no checklist to determine if…

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]]> a4a1ee6b08c9f85789283aeedb8a6157 Amanda posted a new activity comment https://alsnewstoday.com/forums/activity/p/22509/#acomment-22536 Mon, 08 Apr 2024 12:25:42 -0500 Hello GigiP,
I’m Amanda, and I am one of the co-moderators on the ALS News Today forums. I wanted to take a moment and welcome you to the ALS Forums. We have a very supportive and knowledgeable online community. I hope you will chime in when you are comfortable and ask and answer questions, and share your experiences.

I have ALS. My family has… Read more

In reply to - GiGiP became a registered member ]]>