ALS News Today Forums | Dagmar | Activity https://alsnewstoday.com/forums/members/dagmar-munn/activity/ Activity feed for Dagmar. Thu, 23 May 2024 23:56:58 -0500 https://buddypress.org/?v=2.6.10 en-US 30 hourly 2 91087addc086ddfcbd7c2898744720b3 Dagmar replied to the discussion The best resources for finding an ALS drug trial and ALS research opportunities - - ALS Awareness Month 2024 in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/the-best-resources-for-finding-an-als-drug-trial-and-als-research-opportunities-als-awareness-month-2024/#post-25503 Thu, 23 May 2024 17:19:53 -0500 Reply to The best resources for finding an ALS drug trial and ALS research opportunities - - ALS Awareness Month 2024

This is a great and comprehensive list! I recommend our members bookmark this post so that they can come back and refer to it all year long.

Big thanks Amanda, for compiling this list!

]]> 68b7ce9cc558f3b0172255edb66d428d Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22954/#acomment-22964 Thu, 23 May 2024 17:16:55 -0500 Hello Luna,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - luna became a registered member ]]> 3865cc6eab284d9391037686f832e0d0 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22949/#acomment-22963 Thu, 23 May 2024 17:16:24 -0500 Hello Harleysrfun,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - harleysrfun became a registered member ]]> f43861cb20ec4e914ebe208f21e33185 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22948/#acomment-22962 Thu, 23 May 2024 17:15:49 -0500 Hello Laurel,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - laurel became a registered member ]]> d140e9c75a647a2c5a4aeff39323e711 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22947/#acomment-22961 Thu, 23 May 2024 17:15:15 -0500 Hello gigiof3,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - gigiof3 became a registered member ]]> fd797b2813a8768e1f9b6a7d98b5dccb Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22929/#acomment-22960 Thu, 23 May 2024 17:14:35 -0500 Hello Dundee,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - dundee became a registered member ]]> 8373b05de44930f6b308be85e8a25b44 Dagmar replied to the discussion Fatigue Post Physical Activity in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/fatigue-post-physical-activity/#post-25438 Thu, 23 May 2024 17:11:09 -0500 Reply to Fatigue Post Physical Activity

Sounds like you’ve found a good strategy to follow and it is working for you. 🙂

]]> 08ceb4da97c7cdf564b30f7784390d1c Dagmar replied to the discussion Activity induced in the forum ALS Progress https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25528 Thu, 23 May 2024 17:08:18 -0500 Reply to Activity induced

I know of one study that pointed to genetic ALS being triggered by strenuous exercise. But not with sporadic. After ALS diagnosis, both genetic and sporadic benefitted from daily exercise.

]]> 0db19fd891896a0627769b26678b9287 Dagmar replied to the discussion Activity induced in the forum ALS Progress https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25528 Thu, 23 May 2024 17:05:49 -0500 Reply to Activity induced

I believe that because the sports figures who have ALS are so highly public, we associate their sport as having caused their condition. There have been many studies but no direct link found as of yet – – only assumptions.

]]> 97644ca1477930a060ee86820177a773 Dagmar replied to the discussion Activity induced in the forum ALS Progress https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25528 Thu, 23 May 2024 17:03:13 -0500 Reply to Activity induced

I agree.

]]> cde0da1f34e8e59b835212235afb5c10 Dagmar started the discussion The best resources for finding an ALS drug trial and ALS research opportunities - - ALS Awareness Month 2024 in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/forum/boosting-our-voices/als-awareness-month/ Wed, 22 May 2024 06:01:46 -0500 The best resources for finding an ALS drug trial and ALS research opportunities - - ALS Awareness Month 2024

“ALS Tips & News You Can Use”

We know that newly diagnosed ALS patients and their families are well “aware” of ALS. Rather, they often ask for help navigating the ups and downs of living with the condition. So, for ALS Awareness Month, our forum moderators have created “ALS Tips & News You Can Use.” It’s a collection of up-to-date ALS… Read more

]]> 7396832b645ad8dc41ed6d6be5c09b3f Dagmar replied to the discussion Fatigue Post Physical Activity in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/fatigue-post-physical-activity/#post-25438 Tue, 21 May 2024 16:28:35 -0500 Reply to Fatigue Post Physical Activity

I’ve also found that pacing is a factor – – as in, normal workouts (sessions) on day 1 and day 2, day 3 is rest/mild exercises. On day 3 I feel like someone switched all the plugs – – lots of uncoordinated moment… but then the next day everything feels stronger and movements have improved mightily, so it’s a day 1 all over again.

Bottom…

Read more

]]> e28982909ce7ed5ada49ccc383606a43 Dagmar replied to the discussion Best questions to ask your doctor when you are initially diagnosed - - ALS Awareness Month 2024 in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/best-questions-to-ask-your-doctor-when-you-are-initially-diagnosed-als-awareness-month-2024/#post-25474 Tue, 21 May 2024 16:18:24 -0500 Reply to Best questions to ask your doctor when you are initially diagnosed - - ALS Awareness Month 2024

How about the best questions to ask your physical therapist? Occupational Therapist? Dietician? Speech-Language Pathologist? Others?

]]> 02789778c762822a6fac5d9673181aa0 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22918/#acomment-22928 Mon, 20 May 2024 18:38:46 -0500 Hello SMammon,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - smammon became a registered member ]]> af62e2219bc0e57f10cbdd7f69516940 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22917/#acomment-22927 Mon, 20 May 2024 18:38:11 -0500 Hello Stone,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - stone became a registered member ]]> e3b3e3d06898c8692bfc5a669024ee55 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22916/#acomment-22926 Mon, 20 May 2024 18:37:45 -0500 Hello Mischa,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - Mischa became a registered member ]]> 46450084cbdaf89f0cfbc9c58965ed8b Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22899/#acomment-22907 Thu, 16 May 2024 16:56:01 -0500 Hello Nels,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - nels became a registered member ]]> 17971aff0fd995b7475362bb76bf5ad9 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22895/#acomment-22906 Thu, 16 May 2024 16:55:32 -0500 Hello SamFriedlaner,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me… Read more

In reply to - samfriedlander became a registered member ]]> a35c3817563a7d40cd0da866a4f73021 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22886/#acomment-22905 Thu, 16 May 2024 16:54:53 -0500 Hello Lus,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - lus became a registered member ]]> 377addab4f82dc63fa7ce314867a6d7a Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22885/#acomment-22904 Thu, 16 May 2024 16:54:29 -0500 Hello Tom140,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - tom140 became a registered member ]]> 1cd96e1bda3cdcc006b8eca5b3fa6071 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22884/#acomment-22903 Thu, 16 May 2024 16:54:02 -0500 Hello Powery,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - powery became a registered member ]]> 1343f0de4a0027150a47f39cc5794850 Dagmar replied to the discussion Best questions to ask your doctor when you are initially diagnosed - - ALS Awareness Month 2024 in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/best-questions-to-ask-your-doctor-when-you-are-initially-diagnosed-als-awareness-month-2024/#post-25474 Thu, 16 May 2024 16:50:48 -0500 Reply to Best questions to ask your doctor when you are initially diagnosed - - ALS Awareness Month 2024

I also asked my doctor about continuing to go to the dentist (yes), continuing annual health screenings – – like mammograms or colon cancer (only if I were at risk), and if I should continue exercising (yes).

]]> 913958c5f159d35d30331654590f0b72 Dagmar replied to the discussion Does ALS Awareness month matter to you? in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/#post-24114 Thu, 16 May 2024 16:46:17 -0500 Reply to Does ALS Awareness month matter to you?

Hello Lis, yes – – I agree, ALS changes our lives completely. Have you participated in any of the annual ALS Awareness events? If so, which ones and have they helped you to better accept having the condition? I remember being newly diagnosed and for me, the events were confusing and I had to wait a while before feeling comfortable enough to join in.

]]> 0808ca464f15270d407e9d5d44fe3f9f Dagmar started the discussion Best questions to ask your doctor when you are initially diagnosed - - ALS Awareness Month 2024 in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/forum/boosting-our-voices/als-awareness-month/ Wed, 15 May 2024 06:01:12 -0500 Best questions to ask your doctor when you are initially diagnosed - - ALS Awareness Month 2024

“ALS Tips & News You Can Use”

We know that newly diagnosed ALS patients and their families are well “aware” of ALS. Rather, they often ask for help navigating the ups and downs of living with the condition. So, for ALS Awareness Month, our forum moderators have created “ALS Tips & News You Can Use.” It’s a collection of up-to-date ALS… Read more

]]> 3e717efc69f6e5675d2ec86781f07936 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22866/#acomment-22875 Tue, 14 May 2024 17:18:36 -0500 Hello ksutton,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - ksutton became a registered member ]]> 0b7c3317820cabfee26cf8f07d8d49b4 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22865/#acomment-22874 Tue, 14 May 2024 17:18:08 -0500 Hello SamFriedlandelf,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me… Read more

In reply to - samfriedlandelf became a registered member ]]> 99133cc2ba756a10ca4c0c419fcdc28d Dagmar replied to the discussion ALS Awareness Month 2024 - - Our favorite ALS resources in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/als-awareness-month-2024-our-favorite-als-resources/#post-25472 Tue, 14 May 2024 17:12:51 -0500 Reply to ALS Awareness Month 2024 - - Our favorite ALS resources

A few years back, I had the opportunity to work with ALS Golden West. They are a great resource for ALS patients living in California nd Hawaii. Thank you for sharing your experiences with them and, for giving them a shout-out. 🙂

]]> 8021f5d7fd54145f59291f36019a156a Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22829/#acomment-22848 Fri, 10 May 2024 21:29:32 -0500 Hello aimeesmith1970,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me… Read more

In reply to - aimeesmith1970 became a registered member ]]> ea1d96ad8553edce05a339026ad96c35 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22828/#acomment-22847 Fri, 10 May 2024 21:27:33 -0500 Hello ste,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - ste became a registered member ]]> 593505b6425f37ca2d295f013472a4b1 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22827/#acomment-22846 Fri, 10 May 2024 21:27:05 -0500 Hello mag,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - mag became a registered member ]]> dc6a6b7162f98595c2e8a511af1cd9b9 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22826/#acomment-22845 Fri, 10 May 2024 21:26:40 -0500 Hello VLane,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - vlane became a registered member ]]> 462f42da354ba5733c42384f808c1ed6 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22825/#acomment-22844 Fri, 10 May 2024 21:26:11 -0500 Hello Mon,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - mon became a registered member ]]> c21fefcc432f472b9fa7e4322294bf33 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22824/#acomment-22843 Fri, 10 May 2024 21:25:40 -0500 Hello Martha,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - martha became a registered member ]]> 0d6c2a43cbea9cd0970964446cb3cfc1 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22823/#acomment-22842 Fri, 10 May 2024 21:25:09 -0500 Hello Bubbles,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - bubbles became a registered member ]]> b5510d364438e50f1b893fd0da310177 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22814/#acomment-22841 Fri, 10 May 2024 21:24:37 -0500 Hello Lorrie,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - lorrie became a registered member ]]> 8c6083950c04f66fd08c165299f6b56b Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22813/#acomment-22840 Fri, 10 May 2024 21:23:28 -0500 Hello juliez,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - juliez became a registered member ]]> 445fa4c7c19634454bd0a5ca7c9a6369 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22812/#acomment-22839 Fri, 10 May 2024 21:22:57 -0500 Hello Lusoper,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - lusoper became a registered member ]]> 0b34b0c968f1cabab2fa1765c639b80b Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22811/#acomment-22838 Fri, 10 May 2024 21:22:24 -0500 Hello Beth,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - beth became a registered member ]]> d068c9c8b0e369197d3483e4d26cd2dc Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22810/#acomment-22837 Fri, 10 May 2024 21:21:58 -0500 Hello Tee,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - tee became a registered member ]]> 63d643a9402a2224a6534d63b9475e44 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22809/#acomment-22836 Fri, 10 May 2024 21:21:34 -0500 Hello Nicole,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - nicole became a registered member ]]> 9f2aa3fd5b6d69389ac65e6a6f10a460 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22808/#acomment-22835 Fri, 10 May 2024 21:21:10 -0500 Hello SLB50,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - slb50 became a registered member ]]> ba4ec0495a5aaade7572d0852b1fde82 Dagmar replied to the discussion An opportunity for Permobil users to share their story in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/an-opportunity-for-permobil-users-to-share-their-story/#post-25496 Fri, 10 May 2024 21:09:19 -0500 Reply to An opportunity for Permobil users to share their story

Ste, I am sorry to read about your unfortunate wheelchair experience. Wow, you didn’t get good customer support. I have asked my contact at the company if they can follow up with you. Dagmar

]]> d8307746c9d2063bbdfec9bbdde63321 Dagmar replied to the discussion An opportunity for Permobil users to share their story in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/an-opportunity-for-permobil-users-to-share-their-story/#post-25496 Fri, 10 May 2024 20:57:58 -0500 Reply to An opportunity for Permobil users to share their story

Len-jax, please email Hawkin. I also will alert him to your reply on this site. Thank you for wanting to share your great Permobil story! Dagmar

]]> 42671bedbd0277c71ef0766cb78eb517 Dagmar replied to the discussion An opportunity for Permobil users to share their story in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/an-opportunity-for-permobil-users-to-share-their-story/#post-25496 Thu, 09 May 2024 17:36:46 -0500 Reply to An opportunity for Permobil users to share their story

Forum members – – don’t miss this opportunity! We would enjoy learning more about you.

]]> 6b9cedf3f16ddb1f9271e41472c3e1df Dagmar replied to the discussion Red flags to know to avoid ALS scammers - - ALS Awareness Month 2024 in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/red-flags-to-know-to-avoid-als-scammers-als-awareness-month-2024/#post-25473 Wed, 08 May 2024 17:56:37 -0500 Reply to Red flags to know to avoid ALS scammers - - ALS Awareness Month 2024

The random emails I receive in the comments on my blog, or reading posts in Facebook groups – – where the writer says they had ALS but were “miraculously” cured by taking an obscure herbal supplement. Or by visiting with a Dr. whose name is a bunch of consonants! Who falls for these scammer’s stories?

I wrote a humorous blog post about…

Read more

]]> 03a04397485c3d6af44a47128cbd929c Dagmar started the discussion Red flags to know to avoid ALS scammers - - ALS Awareness Month 2024 in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/forum/boosting-our-voices/als-awareness-month/ Wed, 08 May 2024 06:01:59 -0500 Red flags to know to avoid ALS scammers - - ALS Awareness Month 2024

“ALS Tips & News You Can Use”

We know that newly diagnosed ALS patients and their families are well “aware” of ALS. Rather, they often ask for help navigating the ups and downs of living with the condition. So, for ALS Awareness Month, our forum moderators have created “ALS Tips & News You Can Use.” It’s a collection of up-to-date ALS… Read more

]]> 77a32a5f54713781a379ac6ddf95daf0 Dagmar replied to the discussion How do you approach ALS Awareness Month? in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/how-do-you-approach-als-awareness-month/#post-25445 Tue, 07 May 2024 17:14:29 -0500 Reply to How do you approach ALS Awareness Month?

I try to share information about ALS with my friends who don’t have the disease. Plus, through my columns and blog, I try to keep my fellow pALS motivated to maintain their resilience.

]]> bf0ff66ede26cae9f6a5b9c779dc8cba Dagmar replied to the discussion ALS Awareness Month 2024 - - Our favorite ALS resources in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/als-awareness-month-2024-our-favorite-als-resources/#post-25472 Tue, 07 May 2024 17:11:08 -0500 Reply to ALS Awareness Month 2024 - - Our favorite ALS resources

I have several favorite sites:

Your ALS Guide https://www.youralsguide.com/ Helpful articles along with short videos on ALS life topics, plus equipment recommendations.

I Am ALS https://www.iamals.org/ Keep up with the latest efforts for ALS advocacy in government, healthcare, and communities.

]]> 3a4ab97242ad7b636d7d552c0c74a8f2 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22787/#acomment-22793 Mon, 06 May 2024 22:15:39 -0500 Hello grandma,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - grandma became a registered member ]]> de011519528750a9fc1181fcb34be156 Dagmar posted a new activity comment https://alsnewstoday.com/forums/activity/p/22786/#acomment-22792 Mon, 06 May 2024 22:15:07 -0500 Hello Gailypoo,

Welcome to the forum – – I hope you have been able to read our various discussions and you’re finding it easy to navigate to different topics.

I am one of the forum moderators as well as a person living with ALS: I was diagnosed 14 years ago, in 2010. If you have any questions, concerns, or even suggestions, just let me or… Read more

In reply to - gailypoo became a registered member ]]>