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What topics are of the most interest to you?
We are always striving to improve and to ensure that the information on the ALS forum is accurate and relevant to our community. What kind of articles would you like to hear for our flash briefings? Would you prefer to listen to a research article or a column? Your feedback is very important to us, so please share your thoughts!
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7 Replies
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At the moment it woud be how is the evolution of the deseases and how you can adapt psychologicaly to what happens ( excuse my Bad englisch)
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Isabelle, thank you for your suggestion. I am not sure what you mean by “evolution of the disease” – – do you mean historically? Or how the disease progresses in the body? If it is the second one… there are known stages, but not everyone’s ALS symptoms follow a straight-forward or predictable pattern. We all seem to vary from each other. However, here is a short article describing the so-called stages: https://alsnewstoday.com/stages-of-als/
As for adapting psychologically, I have written much about my own experiences and invite you to read these:
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How are your days, what can you do and what kind of activities can you do? How do you organize your daylife with the illness, do you have to lie or to rest often in the day?
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Another great suggestion Isabelle.
I think I will post this one today! Meanwhile, you might like to read this:
How I Cruise Through the Slow Lane of ALS
My Tricks for Adding Movement to My Day
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I tend to look for articles that deal with day to day practical needs that are due to having ALS. Reading about what others find helps them, keeps me focusing on a positive mindset.
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Thank you for the feedback Carolyn, I will keep that in mind when selecting articles for the Flash Briefings!
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Thanks Amanda, that would be great!
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