We know that newly diagnosed ALS patients and their families are well “aware” of ALS. Rather, they often ask for help navigating the ups and downs of living with the condition. So, for ALS Awareness Month, our forum moderators have created “ALS Tips & News You Can Use.” It’s a collection of up-to-date ALS information, resources, and tips.  Forum members are invited to comment and share their suggestions on each topic posted. Let’s help each other learn how to live with ALS.

The best resources for finding an ALS drug trial and ALS research opportunities

Many pALS and their families choose to get involved with research either in hopes of slowing down the progression and/or helping find a cure. There are research opportunities for people with sporadic or genetic  ALS. You don’t necessarily have to have ALS to participate! Some studies are in need of people with a predisposition such as a genetic mutation associated with ALS and others need controls to participate. Some reputable sites to help you look for opportunities are below.  

https://clinicaltrials.gov/ is a central database of clinical trials for all conditions, including ALS.

The ALS Association also lists opportunities at

https://www.als.org/research/clinical-trials-for-patients

Specific reputable ALS research organizations include:

https://lesturnerals.org/research-patient-center/clinical-trials-studies/

https://neals.org/als-trials/als-clinical-research

https://www.hopkinsmedicine.org/neurology-neurosurgery/clinical-trials/als-clinical-trials

https://www.miami-als.org/research/

https://www.mayo.edu/research/clinical-trials/diseases-conditions/amyotrophic-lateral-sclerosis-(als)

What else can you add to our list?

Big thanks Amanda, for compiling this list!