ALS News Today Forums » All Posts https://alsnewstoday.com/forums/forums/forum/boosting-our-voices/als-in-the-media/feed/ Fri, 24 May 2024 04:28:55 -0500 http://bbpress.org/?v=2.5.14-6684 en-US https://alsnewstoday.com/forums/forums/topic/qalsody/#post-24015 <![CDATA[Reply To: QALSody]]> https://alsnewstoday.com/forums/forums/topic/qalsody/#post-24015 Tue, 23 May 2023 17:02:18 +0000 Dagmar That was a great interview Amanda! Thank you for helping to raise awareness of ALS. I’m so happy for you that you are approved for the new treatment.

(your tattoo looked pretty nifty too!!)

]]> https://alsnewstoday.com/forums/forums/topic/qalsody/#post-24013 <![CDATA[QALSody]]> https://alsnewstoday.com/forums/forums/topic/qalsody/#post-24013 Tue, 23 May 2023 00:57:30 +0000 Amanda The local News did a story on SOD1 ALS and QALSody!

https://winknews.com/2023/05/22/cape-coral-woman-with-genetic-als-to-test-newly-approved-drug/

]]> https://alsnewstoday.com/forums/forums/topic/youre-not-you/#post-22587 <![CDATA[Reply To: You’re Not You]]> https://alsnewstoday.com/forums/forums/topic/youre-not-you/#post-22587 Tue, 30 Aug 2022 13:53:48 +0000 Amanda @Katie,

Your perspective is eye opening.  I haven’t read Tuesday with Morrie, yet.  I think reading verses watching a movie may be easier to digest, and I may be able to learn even more. There is something about taking my time to digest what I am taking in when I am reading, and just being able to re-read, and pause and think about what I’ve read.  Thank you! Sometimes the most obvious things are difficult to see.

Amanda

]]> https://alsnewstoday.com/forums/forums/topic/youre-not-you/#post-22580 <![CDATA[Reply To: You’re Not You]]> https://alsnewstoday.com/forums/forums/topic/youre-not-you/#post-22580 Mon, 29 Aug 2022 13:17:27 +0000 Eric Jensen I agree. I avoid them as well. I don’t need a reminder. Plus, it puts the, “what if’s,” in my head. Many of those what ifs won’t happen to me in any degree.

]]> https://alsnewstoday.com/forums/forums/topic/sam-shepard-book/#post-22325 <![CDATA[Reply To: Sam Shepard Book]]> https://alsnewstoday.com/forums/forums/topic/sam-shepard-book/#post-22325 Tue, 19 Jul 2022 20:33:35 +0000 Gwen McMartin This book looks interesting.  I recommend “Learning to Fall” by Philip Simmons.  A collection of essays by the author who had ALS focusing on life and death in general.  He passed in 2002 the year it was published.

]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-22104 <![CDATA[Reply To: ALS in the Movies …and YOU could be a “star”]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-22104 Tue, 07 Jun 2022 21:33:44 +0000 KarenM Awesome news Lisa! 🙌

]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-22091 <![CDATA[Reply To: ALS in the Movies …and YOU could be a “star”]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-22091 Fri, 03 Jun 2022 16:30:04 +0000 Dagmar CONGRATULATIONS – – to Lisa Cross! (Bonahoom) – – our very own forum member/actor/now in a film!…..Lisa was featured in the special article that was published today in ALS News Today! It’s all about the film she’s in, how she heard about the part, and how working with the ALS community left the director with a new-found understanding and respect for those who live with ALS.

Read the full story here:

“Performer With ALS Returns to Acting for ‘Reel’-life Diagnosis”
https://alsnewstoday.com/news-posts/2022/06/03/actor-brings-her-disease-silver-screen-new-movie-about-als/

High five to Lisa! 🙂

]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-21798 <![CDATA[Reply To: ALS in the Movies …and YOU could be a “star”]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-21798 Wed, 20 Apr 2022 20:37:04 +0000 Dagmar Congrats Lisa! What a unique and wonderful experience. it’s great to hear the feedback about the director and crew. I had emailed back and forth with the director early on – – when he asked me if I knew anyone with ALS who might want to be in his movie (HA!) and he was kind and considerate then too. ………..and to be in your sister’s wheelchair (hugs to you).

You are paving new ground for the visibility of the ALS community. Thank you again for stepping up. And for keeping us informed along the way.

]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-21795 <![CDATA[Reply To: ALS in the Movies …and YOU could be a “star”]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-21795 Wed, 20 Apr 2022 20:18:26 +0000 Lisa Bonahoom It’s a wrap!   We filmed yesterday and it was an amazing experience. The director and film crew were so thoughtful. It was filmed in my sister’s house in San Francisco. We worked around the sounds of the city!  It was strange to be in my sister’s wheelchair. It fit me .  The makeup artist did her best to make me look sick, as my character was much more impacted by ALS. Such a memory!!

]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-21763 <![CDATA[Reply To: ALS in the Movies …and YOU could be a “star”]]> https://alsnewstoday.com/forums/forums/topic/als-in-the-movies-and-you-could-be-a-star/#post-21763 Sun, 17 Apr 2022 16:02:44 +0000 Kathy stitz Lisa, I’m so sorry for the loss of your sister.

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