• Awareness and Advocacy

  Rare Disease Day is Here!

  Posted by Amanda on February 28, 2023 at 6:37 am

  Rare Disease Day is here!! What are your thoughts on Rare Disease Day and raising awareness for rare diseases?

  Dagmar replied 1 year, 2 months ago 1 Member · 1 Reply

  • #C9 #FamilialALS
  • ALS
  • ALS Awareness
  • RARE Disease Day
• 1 Reply

• 

  Dagmar

  Member

  February 28, 2023 at 2:32 pm

  BioNews (the parent company of ALS News Today) #whyrare campaign and support goes well beyond Rare Disease Day in February. More than 60% of BioNews contributors are living with or are part of the rare disease communities it serves. I am proud to be a columnist and forum moderator for ALS News Today and proud to share this moving companywide video highlighting why rare disease awareness matters to all BioNews employees and contributors.

  It’s 15-minutes of inspirational messages! ALS is not alone… we are part of a strong voice of many!

  VIDEO: https://youtu.be/F1E6yMXv-1U

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