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Looking for PALS for ALS News Today News Story
Hello everyone! I’m writing a large feature story about the use of big data (patient registries, electronic health records, etc.) in finding new treatments for ALS. To properly tell this story I’d like to talk to a few PALS who have contributed their personal health information to a registry and/or have been involved in a clinical trial. Additionally, if anyone is on an approved therapy for ALS, it would be great to hear your perspective on how patient data can be used to accelerate those approvals.
If you are interested in speaking with me, please reach out to me at [email protected]. Thanks so much!
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4 Replies
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This is exciting Hawkin… I know your project and article will be of interest to our forum members and I hope many will respond to your request.
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Hawken,
That sounds amazing. Please keep us posted. I would love to read your feature story when it is completed.
Amanda -
Happy to talk with you Hawken, if I can be of help. Lisa
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Yes, happy to help.
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