ALS News Today Forums » All Posts https://alsnewstoday.com/forums/forums/forum/als-progress/feed/ Fri, 24 May 2024 04:27:25 -0500 http://bbpress.org/?v=2.5.14-6684 en-US https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25538 <![CDATA[Reply To: Activity induced]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25538 Thu, 23 May 2024 17:08:18 +0000 Dagmar I know of one study that pointed to genetic ALS being triggered by strenuous exercise. But not with sporadic. After ALS diagnosis, both genetic and sporadic benefitted from daily exercise.

]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25537 <![CDATA[Reply To: Activity induced]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25537 Thu, 23 May 2024 17:05:49 +0000 Dagmar I believe that because the sports figures who have ALS are so highly public, we associate their sport as having caused their condition. There have been many studies but no direct link found as of yet – – only assumptions.

]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25536 <![CDATA[Reply To: Activity induced]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25536 Thu, 23 May 2024 17:03:13 +0000 Dagmar I agree.

]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25534 <![CDATA[Reply To: Activity induced]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25534 Thu, 23 May 2024 03:54:14 +0000 Funky I inherited the gene TBK1 which causes ALS and/or FTD. My mother and 3 of her 4 siblings died of FTDementia. They all lived sedentary lives whereas I was very active throughout my life with hiking, skiing, mountain climbing, and windsurfing. I have ALS. In a webinar, a researcher discussed this possibility that activity tilted the disease to ALS.

]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25530 <![CDATA[Reply To: Activity induced]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25530 Wed, 22 May 2024 02:28:08 +0000 Johnny5 There may be something in this. The military trains hard. Football, soccer, basketball, and other sports also require hard training. Long-term physical training in some professions has been noted for higher ALS percentages. Are there any published studies on this information?

]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25529 <![CDATA[Reply To: Activity induced]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25529 Tue, 21 May 2024 21:02:53 +0000 Fran Finney Julie, it is so caring of you to be concerned in this way. ALS is such a complex disease, and we are learning more about it every day.<div>
</div><div>My understanding, both as a physical therapist who worked with people with ALS, and also a caregiver for my husband, who had ALS, is that being healthy and strong is a good thing. It gives the body a better baseline, if in fact a person does develop ALS. It is possible that serious, severe over training, involving head injury, overheating, and other extreme stresses to the body, might throw a person who is already on the edge of developing ALS over that threshold. But in the case of your daughter, if she is training in a reasonable, objective, and practical way, and is not pushing through, severe, unusually difficult training, then her Running is not going to cause her to develop ALS </div>

]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25528 <![CDATA[Activity induced]]> https://alsnewstoday.com/forums/forums/topic/activity-induced/#post-25528 Tue, 21 May 2024 17:38:33 +0000 juliez Hi all- we are at beginning of genetic screening for ALS. My father had ALS and now my cousin has ALS.

I have read on the ALS assoc website, that if you have an effected gene for ALS it may be more likely to be turned in, active disease, in people who participate in certain activities. I think the mention was football, etc. I’m wondering if this would apply to someone who trains for half and full marathons on a pretty routine basis? The question is in regards to my daughter. She is 30 and has been doing some pretty intensive running the last 5-8 years.

Thanks for any info. Or if you can point me in the right direction.

]]> https://alsnewstoday.com/forums/forums/topic/new-genetic-therapy-could-be-a-gamechanger-for-mnd-and-frontotemporal-dementia/#post-25238 <![CDATA[Reply To: New genetic therapy could be a gamechanger for MND and frontotemporal dementia]]> https://alsnewstoday.com/forums/forums/topic/new-genetic-therapy-could-be-a-gamechanger-for-mnd-and-frontotemporal-dementia/#post-25238 Fri, 16 Feb 2024 14:39:32 +0000 Fran91 https://lighthouse.mq.edu.au/article/february-2024/new-genetic-therapy-could-be-a-gamechanger-for-mnd-and-frontotemporal-dementia

lighthouse.mq.edu.au

New genetic therapy could be a gamechanger for MND and frontotemporal dementia

New genetic therapy could be a gamechanger for MND and frontotemporal dementia

]]> https://alsnewstoday.com/forums/forums/topic/new-genetic-therapy-could-be-a-gamechanger-for-mnd-and-frontotemporal-dementia/#post-25237 <![CDATA[New genetic therapy could be a gamechanger for MND and frontotemporal dementia]]> https://alsnewstoday.com/forums/forums/topic/new-genetic-therapy-could-be-a-gamechanger-for-mnd-and-frontotemporal-dementia/#post-25237 Fri, 16 Feb 2024 14:20:26 +0000 Fran91 Good afternoon everyone! Today this news jumped out at me and I found it quite interesting, the only thing is that, like everything, until it reaches humans at least two years because a financing of 22 million dollars is needed.

Shall we all do a little to see if we arrive? he he

I simply wanted to share some light for everyone, although it sounds very far away but I found it quite interesting.

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