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Your advice for newly diagnosed ALS patients & caregivers
In his article, “Five Things You Should Know When Diagnosed with Neuromuscular Disease,” Billy Zureikat shared:
- It’s okay to grieve
- There is nothing wrong with accepting help
- You are not alone
- Find what works well for you
- Adjust and adapt
What additional helpful tips would you add?
Read the full article here: https://mdaquest.org/five-things-you-should-know-when-diagnosed-with-neuromuscular-disease/
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4 Replies
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Take the time to learn as much as possible about your condition (what is happening in your body) and how best to co-exist with it. Use trusted sources and avoid “too good to be true” cures.
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Take the time to learn as much as possible about your condition (what is happening in your body) and how best to co-exist with it. Use trusted sources and avoid “too good to be true” cures.
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Take the time to learn as much as possible about your condition (what is happening in your body) and how best to co-exist with it. Use trusted sources and avoid “too good to be true” cures.
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Do, what you can now before you can’t.
Do, be your own advocate. Speak up and stand up for your needs.
Do, enjoy each day!
Do, research. As Dagmar says. Use reliable sources such as NIH.
Do, be strong, because YOU ARE!
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