ALS News Today Forums » All Posts https://alsnewstoday.com/forums/forums/forum/using-our-forums/feed/ Fri, 24 May 2024 04:24:49 -0500 http://bbpress.org/?v=2.5.14-6684 en-US https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25377 <![CDATA[Reply To: Memory loss]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25377 Tue, 26 Mar 2024 01:10:45 +0000 Johnny5 This is what my VA Dr suggested (that it was age-related). Then I did some research to check and found that there is some comprehensive research covering this issue. See section 4.4 linked below.

Anomia is the problem I suspect is an issue with a percentage of us pALS.
“Visual anomia or optic aphasia was first described by Freund in 1889 and refers to being unable to name objects presented in visual modality, but able to name the same objects when perceived tactually or when given a verbal definition of their function and use” (from ScienceDirect.com)

I have been doing this for 2 “ish” years. The VA has no clue how to diagnose it.

“Recent evidence regarding language disturbances in ALS-FTSD suggests impaired semantic and syntactic processing. Semantic deficits mostly manifest as anomia during confrontation naming or single word comprehension difficulties.”

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8065866/

ncbi.nlm.nih.gov

Cognitive and Behavioral Manifestations in ALS: Beyond Motor System Involvement

Amyotrophic lateral sclerosis (ALS) has long been considered to be a purely motor disorder. However, it has become apparent that many ALS patients develop cognitive and behavioral manifestations similar to frontotemporal dementia and the term amyotrophic ...

]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25369 <![CDATA[Reply To: Memory loss]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25369 Fri, 22 Mar 2024 16:02:16 +0000 Danni I too have noticed a decline in my short term memory since being diagnosed with bulbar ALS in October 2022. I’m 78 so maybe its age related. It’s frustrating.

]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25366 <![CDATA[Reply To: Memory loss]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25366 Fri, 22 Mar 2024 11:52:51 +0000 John E. Mosman My doc said cognitive decline is not unusual with ALS. I sure notice it, particularly short term memory. Long term seems fine, but ask me what I was doing two minutes ago…..

Well not that bad, but it is noticeable and frustrating.

]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25362 <![CDATA[Reply To: Memory loss]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25362 Thu, 21 Mar 2024 19:23:12 +0000 Eric Jensen See a physician with your complaint. Better that.

]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25358 <![CDATA[Reply To: Memory loss]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25358 Thu, 21 Mar 2024 17:13:35 +0000 Dagmar … or it could just be age-related memory loss.

But I do like the image of “having too many words stored in my brain” 😉 😉

]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25354 <![CDATA[Reply To: Memory loss]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25354 Tue, 19 Mar 2024 20:09:45 +0000 Ray This kind of memory loss is very common and not a precursor of dementia. it is a consequence of the volume of words we have stored in memory.The words usually return when the pressure to provide subsides

]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25348 <![CDATA[Reply To: Memory loss]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25348 Tue, 19 Mar 2024 17:00:31 +0000 Dagmar Nettie, that is an issue I face every day… but I don’t know if it is due to my aging, or what? In my case, because I have difficulty forming some words, my brain has to do a lightning-fast search for synonyms – – words that mean the same thing but are shorter and easier to pronounce. Sometimes, the search is “flashlights in a dark basement!” 😉

]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25339 <![CDATA[Memory loss]]> https://alsnewstoday.com/forums/forums/topic/memory-loss/#post-25339 Thu, 14 Mar 2024 22:09:35 +0000 Nettie I have a lot of trouble finding simple words. I know that I know the word but it will not come to my mind. It is very aggravating not to be able to get through a simple conversation. I would love to hear from other people having this issue.

]]> https://alsnewstoday.com/forums/forums/topic/happy-6-year-birthday-to-the-als-news-today-forums/#post-25322 <![CDATA[Reply To: Happy 6 year Birthday to the ALS News Today Forums!!]]> https://alsnewstoday.com/forums/forums/topic/happy-6-year-birthday-to-the-als-news-today-forums/#post-25322 Tue, 12 Mar 2024 17:12:26 +0000 Dagmar awww… 😀 Thank you Amanda for that – – we are a team and we both enjoy helping the members of this forum community in any way we can. You are a wonderful partner to have in this endeavor. Congratulations to you too!

6 years is a long time in “ALS years.” I’m grateful that our forum members decided to join – – their voices and opinions add much to our ongoing discussions. Although, I’ll admit to being shocked that we welcome nearly 10 new members per week – – that means 10 more ALS diagnoses – – 10 too many having ALS without a cure yet on the horizon! I am grateful the ALS News Today Forum is a safe harbor for us while we wait.

Amanda and I are always open to your suggestions – – so members, please don’t hesitate to chime in or send a message. I look forward to another year of friendship, community, and pushing for a cure! 😀

]]> https://alsnewstoday.com/forums/forums/topic/happy-6-year-birthday-to-the-als-news-today-forums/#post-25318 <![CDATA[Happy 6 year Birthday to the ALS News Today Forums!!]]> https://alsnewstoday.com/forums/forums/topic/happy-6-year-birthday-to-the-als-news-today-forums/#post-25318 Mon, 11 Mar 2024 17:37:49 +0000 Amanda Dagmar and I started moderatoring the forums when it was launched in March 2018. We were both excited each time we saw someone join. Then we watched the discussions take off and the online community grow. We learned from one another and have built a strong partnership to support all of you.

It is hard for me to believe that I’ve held this part-time job for 6 years. It has been my favorite job of all time – mainly because it affords me the opportunity to help others and their families with ALS related concerns.

I want to thank Dagmar for being the best co-moderator a person could ask for. We make a heck of team and support each other at every turn. I also want to thank each of you. Because of you I get to keep doing something that brings me joy.

Happy Birthday to the Forum. Thank you to all the community members that read, contribute and keep our online community going.

Peace,

Amanda Sifford

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